Va. falls short with autism services, report says
Virginia does a poor job of providing services to people with autism, the legislature's watchdog group said yesterday.
State services suffer from a lack of coordination, too-late diagnosis of children with autism, poor early-intervention programs and public schools that cannot consistently meet the needs of children, according to the report by the Joint Legislative Audit and Review Commission.
Speaking for the state, Marilyn B. Tavenner, secretary of health and human resources, said, "we support the report." Her department is recruiting two individuals to pull together the different agencies, including the Department of Education, that deal with people with autism, she said.
Autism affects social skills, communication skills and behavior.
Parents seeking benefits for autistic children, and insurance lobbyists gearing up to oppose the possibility of mandated insurance benefits that might include autism treatments, filled a room at the General Assembly Building to hear the report.
Del. Shannon R. Valentine, D-Lynchburg, who sponsored the resolution that led to the JLARC study, said the number of children with autism has reached "epidemic" proportions.
Citing Centers for Disease Control and Prevention numbers, she said one in 150 children is autistic and the incidence rate among boys is one in 94. No one knows why the incidences are increasing, she said.
JLARC began the study last year. Its first report recommended that health-insurance providers be required to cover autism treatment. Under heavy pressure from insurance interests and small-business owners, the General Assembly rejected the proposal.
Nathalie Molliet-Ribet, leader of the JLARC study, said early intervention is important in treatment. As a consequence, autism should be detected in children by age 3, she said. In Virginia, children often are diagnosed well after 3, she added.
Molliet-Ribet also said Virginia has no centralized source of information about the condition. Most families report relying on other parents or the Internet for information, she said. This lack of information hinders families from accessing available programs and from using effective treatments, she said.
Nationally, studies have demonstrated that 90 percent of children improved with intensive interventions, and half reached normal or near-normal functioning, Molliet-Ribet said. The intensity level should be 20 to 25 hours a week for two to three years, she said, but children with autism typically receive three or fewer hours per week.
The JLARC study said early intervention could save the state money; it's now spending about $20,000 for each of the 7,580 autistic special-education students.
Contact Tyler Whitley at (804) 649-6780 or
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Reader Reactions
Wendy: Here is a breakdown of one such study done in California. Please note the graphs. http://www.autismstreet.org/weblog/?p=297
There could be any number of reasons for an increase in overall disability over the past ten years (arthritis from an aging baby boomer population, for example), if you’re including the entire population. Since autism is a childhood-onset disorder, I was referring to children being served under IDEA, not adults who are becoming disabled later in life.
wendy: That’s my point. Parents with truly autistic children are being forced to compete for funds and treatment with those who may not have the condition. We have profoundly autistic children in my school and then we have children who have been diagnosed as such whose only ‘symptoms’ that I can see are they are undermotivated and immature; but they meet the broader definition now being employed.
In reference to Sheesh’s comment that “at least one study shows that the number of kids with total disabilities combined has essentially remained flat…“ I’d like to know WHICH study? The CDC you recommend as a “centralized source of autism information” published an article showing that the incedence of disability in the USA has increased by 3 million since 1999. I wonder how many of those 3 million are autistic?
And yeah, as a parent of a typical child and a child with autism, I will hunt high and low for grants or funds to help pay for treatment, since the average cost is $60,000 per year!
It’s not quite accurate to say “no one knows why the incidence is increasing.“ It is quite clear that the diagnostic criteria have been greatly expanded. This means kids who ten or more years ago might have been classified as having ADHD, language disorders, or “mental retardation” are now being classified under autism. At least one study shows that the number of kids with total disabilities combined has essentially remained flat as the number of kids with autism has increased. This shows that there is no “epidemic” of autism, but that there is an “epidemic” of diagnostic substitution (including a dramatic decrease in the use of the labels like “mental retardation”).
And to Dave who commented above: the article just says there is no centralized source of autism information specifically for Virginia. However, there most definitely is a centralized source of autism information for the country as a whole: the CDC. http://www.cdc.gov/ncbddd/autism/
‘No one knows why the incidences are increasing….‘Do the math, literally. Everyone is lining up for state and federal grants, insurance money and damages awarded in settlements as a result of broadening the definition of autism. The definition includes ‘warning signs’ hardly distinguishable from a child with normal behavioral problems. The article itself says there is no centralized source of information on the condition. Often the information provided comes from advocacy groups that have a vested financial interest in promoting increased diagnoses of autism.
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